← Return to Pancreastatin level at 1500

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Phxsuns (@cfuller84)

Pancreastatin level at 1500

Neuroendocrine Tumors (NETs) | Last Active: 5 days ago | Replies (27)

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@hopeful33250

Hello @cfuller84

I read your post about the pain and the results of your blood test. Since you are experiencing so much pain, please know that it is your right to get a second opinion.

I would agree with @elm60 that you need a consult with NETs specialist. Do you know how to find one in your area? Here is a list from the Carcinoid Cancer website. https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

If you can get to a Mayo Clinic facility (they are in Minnesota, Florida, and Arizona) that would be a great place for a second opinion. Here is information about obtaining an appointment at Mayo Clinic https://www.mayoclinic.org/appointments?

I hope to hear from you again to see what progress you have made in finding some help. Will you post again?

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Replies to "Hello @cfuller84 I read your post about the pain and the results of your blood test...."

Hi,
So i have been going to the mayo GI department in PHX Arizona. Unfortunately they do not want to refer