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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@johnbishop

Hello @larryh123, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share their experiences, find support and exchange information with others. Thank you for sharing your story and what helps you, especially the tip about ways to stretch even when you can't get out of bed and finding a daily routine to help with mobility and some pain management.

I posted the link to the MDA.org website so that it appears in your message. You will be able to add URLs to your posts in a few days. There is a brief period where new members can't post links. We do this to deter spammers and keep the community safe. Clearly the link you wanted to post is not spam, but will help members locate an MDA Care Center near them.

Can you share what you were searching for when you found Connect?

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Replies to "Hello @larryh123, Welcome to Mayo Clinic Connect, a welcoming online community where patients and caregivers share..."

Hello - hope you are doing well. I was asked to register via the connect website for a webinar. During the webinar they talked about all of the resources that are coming up on Connect so thought I’d check it out. I do understand an appreciate the URL restriction and agree it is in the communities best interest.