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Sjogren’s Syndrome – Introduce yourself and meet others
Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)Comment receiving replies
Hello @nanke99 That must be scary to have a mass in your salivary gland. I’m so glad you’re going to have an ultrasound and will get some more info. You also mentioned toxic exposure and autoimmune disease. Are you concerned that you’ve had an exposure? Be sure to ask the head/neck specialist.
After your US, will you let us know what you learned?
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Becky, I don't think I saw this 1st message from you- sorry! I just responded to your other one.
Re.; toxic exposure- yes, I am a 9/11 survivor with significant dust cloud exposure and some long term environmental, as a resident.
The reason I specifically wonder about this with my salivary gland, is that I have been told my mass is unusual, and I also have very specific memories about the taste of ash and chemicals in my mouth- for weeks. "I can't get the ash out of my mouth". It was very disturbing, and still is to remember, but that's the connection. I am a member of one of the WTC clinics here in NYC, and have notified my GP there. Once I get my next test/MRI results, I'll get opinions from their ENT as well.
Nancy