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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
My pulmonologist said that I have bronchiectasis and MAC. So for 4 months he has me on a nebulizer two times a day. One is a saline solution 3% and budesonide .5%. I also have the aerobika that I use when I feel a cough. What my schedule is to walk for an hr in the morning around 6am, then do an hr of yoga. I find the poses that are inverted to release the most phlegm. Then I have some breakfast. Then I begin the nebulizers that takes close to an hr. Its all around 11-11.30 before I do anything else. Then towards evening I try to have dinner at 6pm and then being the second round of my nebulizers. I try like you to stop eating and drinking 3 hrs before going to sleep. I probably have that threat of acid reflux. The Dr. did recommend going to National Jewish Health for the best treatment. Did you go to National Jewish Health?
You are so helpful. Thank you.
Replies to "My pulmonologist said that I have bronchiectasis and MAC. So for 4 months he has me..."
Interesting for at NJH they advised not using Nebulizer except with two-3 hours after eating. My routine is to use before breakfast and early evening before dinner. Their recommendations are based on danger of food aspirations.
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Have you tried saline 7%? for me it was a huge difference from the 3%. Also using the Aerobika when you use the saline is very helpful. I get up at 6 and am totally done by 6:30-6:45AM. I work full time so I try to get the second treatment done between 2-4.