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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@gingerw

@so1frustrated I have read some of your posts here, and please allow me a bit of time to read the entire thread. My brain fog gets in the way of clear thinking, sometimes. That said, I feel the need to reach out immediately to you.

Crying is a release. Of emotions, of stress. Gosh only knows you have had your fair share of all this recently! I wager you might have felt embarrassed to cry, but also some relief. As a fellow Aspie, we spend a lot of time masking how we are really doing/feeling. We get frustrated at not being heard/understood in a manner we can relate to. We get angry at feeling we are not taken seriously. You have kept detailed and great notes. Attention to detail is one of our strengths, sometimes to the chagrin of the medical team.

Here is a link to giving you the difference between a nephrologist and urologist: https://www.healthline.com/health/what-is-a-nephrologist#tests-and-procedures. Is there a teaching hospital near you, or university-linked medical facility? To go this long with the situation you are facing, must be depressing, not to add in energy depleting. I will pop back in a bit later when I have had a chance to read this entire discussion.
Ginger

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Replies to "@so1frustrated I have read some of your posts here, and please allow me a bit of..."

Ginger thank you for responding as a fellow Aspie, and to all others (hope you can see this), here is LATEST UPDATE FROM CT UROGRAM yesterday:. The radiologist who reviewed called my Urologist immediately. Copied from the on-line report posted early this morning: IMPRESSION:
Ill-defined expansile mass in the right renal pelvis and proximal ureter
producing moderate right pelvocaliectasis and moderate to severe ureterectasis
of the proximal ureter with abrupt tapering. Findings are highly suspicious for
urothelial carcinoma.
Got a call from my urologist last night who said he is referring me to another urologist in their group who can see me sooner for surgical evaluation as wants to move fast. The "new" urologist's office just called me and will be seeing for pre-op meeting tomorrow and the surgery is scheduled for Monday. OH CRAP, here we go. Needless to say I am scared and nervous but knowing my God is my God and in charge, no matter the outcome, and can see His hand in intervention and direction. Hoping all of you who have been involved in my posts can see this. Thank you