← Return to Seeking Second Opinion for Thoracic Myelopathy at Mayo Rochester

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@oldradioguy

I'm in Boston at Mass General with very similar symptoms and the same MRI. After dozens of tests, and an angiogram to rule out an AVM, my neurologist's working diagnosis is insufficient blood flow in the spinal cord veins. Cause unknown. He doesn't offer any real treatment except good vascular hygiene and hope it stabilizes. Currently looking for any research/trials for this.

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Replies to "I'm in Boston at Mass General with very similar symptoms and the same MRI. After dozens..."

oldradioguy: I am still waiting for the UND-NIH to reopen their studies program before I am able to have an evaluation. Unfortunately for me - and the rest of the people "waiting in line" - this could take several months to a year. Mayo Clinic's neurology department has put me "on hold" for any further evaluation - even a televisit. I have since moved on to seek a virtual 2nd opinion at the Cleveland Clinic Nuerology Department. They have reviewed my medical records, including the past two years at Mayo, and have recommended I have a MRI done here locally to compare to the last one at Mayo (done 11 months ago). We are set up for a Zoom appointment to discuss the findings of this MRI (done this past week) and plan out possble options moving forward. I will keep you posted as to the outcome. In the meantime, good luck with your current situation.