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MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
Replies to "A question for all of you: is there a connection between MAI and GERD? Thanks! (I..."
I have both also.
@ehliny, I can't remember if I have asked you if you have a first name? Care to share it? My note on Gerds:
GERDS is very common .. either before or after meds. I had it prior to meds .. I think a result of a terrible bout of pneumonia in 2003 and multiple prescriptions of antibiotics and steroids .. just ripped up my stomach. Dr. Aksamit said it is thought there is a connection between GERDS and MAC .. as well as Bronchiectasis. Hope this helps clarify! Hugs! Katherine
I think there's a greater connection between GERD and MAC meds... I've not heard those who are asympomatic having the problem
I am sure there is a connection between GERD and MAC meds. However, there is documented evidence of a high percentage of people who have been diagnosed with GERD also having a MAC diagnosis (not from the meds). I have also discovered that the incidence for MAC is higher with people who have pectus because of skeletal structure. I pray to the good God my son doesn't have MAC as he has lots of symptoms, and he was born with pectus. We did, however, have his repaired at Boston Children's in 1981. - Mother's guilt. Irene
@irene5, Irene, STOP! If all us mothers with adult children with various issues slit our wrists .. there might be few of us mothers left in the world!! I myself only gained 12 pound with a pregnancy because I was chasing around a toddler plus working .. when I produced an adult hyper active .. I also had mother's guilt until I realized the above! So join me in realizing we did our best!! Hugs! Katherine
BUT Your info was interesting .. something I was unaware of .. thanks for the new info .. anyone interested can check into:
Principles and Practice of Infectious Diseases https://books.google.com/books?isbn=1455748013
John E. Bennett, Raphael Dolin, Martin J. Blaser - 2014 - Communicable diseases
of macrophage activation to eliminate intracellular MAC.79 MACspecific T cells ... Studies have reported that 11% to 27% of individuals with MAC have pectus ...
Unfortunately that does not indicate a clinical association between MAC & GERD. It is one of the areas in which no research has been done so any evidence is circumstantial (as is that many asymptomatic folks like me don't have GERD). The closest thing I've found is a NJH article mentioning that GERD may be a cause of MAC...again, without clinical research to prove the hypothosis.
That said, the important thing, I think, is whether the treatment for GERD changes for those with MAC. Anyone found research on that?
Boomer, Dr. Timothy Aksamit of Mayo Clinic, Rochester MN speaks all over the world on MAC .. and he told me he feels there is a connection between GERDS and MAC despite there not being proven research .. that statement is good enough for me.
Then recently Terri had this experience at National Jewish Health for MAC .. another "mecca" ..
@tdrell .. terri The reason MAC was found in my lungs when i had the bronchoscopy was that I have severe GERD and since it...NTM is in tap water....it had been aspirated into my lungs as I slept.
I think the two experiences give us a very good feel for not discounting GERDS being connected to MAC .. since there is very little money for researching MAC .. it results in very little clinical association/research to prove the hypothesis.
Since as Terri said .. the MAC RESULTS from the GERDS .. it ends up with continuing treatment for the GERDS .. and/or treatment for MAC. Katherine
Thank you. You're kind! Wow - impressive, informative, and pricey book! Irene
@irene5, Irene, I didn't mean for you to purchase the book . . ONLY that I found it when I was googling! You might go to Amazon books and just read the book reviews on that book .. you really usually learn a lot sometimes from the reviews. Hugs! Katherine
Yes there is. I have both. Irene