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DiscussionWhat did you find most surprising once you were out of the ICU?
Intensive Care (ICU) | Last Active: Dec 16, 2021 | Replies (107)Comment receiving replies
Replies to "@snetterpie, I'd like to add my welcome. I see you've connected with @rosemarya and @lioness. I'd..."
My recovery physically was really slow. After discharge, I could not sit for 15 minutes without laying down again. I was exhausted, felt horrible and had nothing given to me at discharge except follow up appointments.
I had a psychiatrist that saw me every day for 2 minutes and when I tried to talk about the dreams and nightmares, she just said you were delusional and it wasn’t real. That’s it.
In the beginning, I asked for some details to fill in time lapses, but my friend that found me on the floor could only tell me so much because I was taken by helicopter to Rochester and he stayed home with my puppy.
I had no family members come visit. My mom and sister were 5 hours away and sister and her husband were in CO. My dad had already passed a year and a half before that and he and I were close.
So, I had no one with me while I was in the coma or 14 days later when I was discharged.
I knew puzzle pieces were missing and wanted to fill that time in, but couldn’t.
The helicopter 2 weeks ago was my first panic attack and brought me right back to waking up alone and didn’t know where I was. My unconscious brain connected to it and I froze, shaking, staring, nauseous and afraid. I’m the strong one and I was a puddle.
Unfortunately, I have been hospitalized with double pneumonia and Addison’s Crisis’ so many times since then. I was inpatient in September, October into November, December and January. I’ve done pretty well since then.
My first incurable disease is Addison’s. I have had asthma since I was born, Hashimoto’s Disease, (both autoimmune) and have no stomach. My esophagus is connected to my intestine. There’s more, but you probably didn’t want a novel 📖 to read.
I’m still suffering from anxiety from 2 weeks ago and hate feeling so out of control.
It is helping to read each other’s stories and everyone has been so kind to me. Thank you!!