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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: Aug 16 4:15pm | Replies (388)
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@hopeful33250

Hello @kenyalama,

I took Neurontin for about 3 weeks when I had Shingles. It helped with the pain. I did feel foggy when I took it and slept a lot but I never experienced amnesia.

I found it very helpful for the nerve pain associated with Shingles.
Please remember that everyone reacts to medicines differently.

I took a very small dose, 100 mg as needed. Are you taking a higher dose?

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Replies to "Hello @kenyalama, I took Neurontin for about 3 weeks when I had Shingles. It helped with..."
kenyalama | @kenyalama | Apr 27, 2021

Hello!
I am not taking Neurontin or Lyrica. While taking Neurontin I woke up from a nap after returning from a pleasant trip to New York City and I could not remember what time it was or what I had done in the morning
Scary!
But yes, everyone reacts differently to medicines.
I am on Dilantin, Backifen, Magnesium etc and a dilaudid spinal pump for a relentless Trigeminal neuralgia but none of that helps with either the arachnoiditis and pelvic floor issues caused by it
For one block plus I need a scooter or wheelchair
Thank you for your work as a volunteer.
I read everything I can about all my conditions but sometimes I end up frustrated. Nothing new fir many years.
I even tried hyaluronic injections in the spine to dissolve the adhesions ( Dr. Tacz Lubbock Texas . No one is doing that fir what I can read ?

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