Thank you for starting this thread. I am sorry you have to live with this, but very glad to read how you persevere. I’m 65, After 17 years of experiencing feeling my Brachial Plexus peripheral Neuropathy (due to BC Radiaion), move from my fingertips, now into my back. I’m in the self research mode, for pain, numbness, loss of strength, dexterity and atrophy. I have a great Neuropathy team at the UW Medical. I realized years ago what I loose I don’t get back. I think I denied that reality. With me, my PN goes ballistic when the weather goes from rain to sun (I live in the PNW). I volunteer at a Food Bank, I keep dropping anything in my left hand. Mostly because I can’t feel anything, but pain most days. Like cancer, this will not define me. What else can we do? Prayers science comes up with cures and relief for this little researched medical issues. The best articles I’m finding are from the UK, in the 90’s, and I can’t reach any of the references, sites are down. I’ve found some good ones (Mayo Clinic and John Hopkins research) from the USA in 2017. Mostly, “sorry Charlie”, prognoses ☹️ God be with you, what we learn, will help others down the road. 🙏🏼
Robin