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DiscussionPolymyalgia Rheumatica (PMR): Meet others & Share Your Story
Polymyalgia Rheumatica (PMR) | Last Active: Nov 18 7:12pm | Replies (1907)Comment receiving replies
Replies to "Hello @ingekunga, Welcome to Mayo Clinic Connect. The 6 months of back and forth between 1..."
Hi john I have been on pred a year and a half my going downhill .5 at a time was doing well. When I went from 1.5 to 1 I slept couldn’t get up dizzy I’d forced etc. I went back up to 1.5 band after couple of days better. My Gp said adrenals not producing cortisol. It put me into a higher pain level so went back up to 2 ok on that. I would like to go down again. One specialist said to go down . 25 at a time and the rheumatica clinic suggested varying the dose like 2 one day then 2.50 the next add no back again. I like your pain level idea - though I do have a problem deciding as I had arthritis in thumbs before pmr so what is age and arthritis and what is pmr on rise. It’s great to have people to chat to.