← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

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@johnbishop

Hello @ingekunga, Welcome to Mayo Clinic Connect. The 6 months of back and forth between 1 mg and 1/2 mg prednisone was after 2-1/2 years of being on prednisone starting at 20 mg dosage for my PMR diagnosis. My Mayo rheumatologist suggested slower tapering off by trying to go down by 1/2 mg every 2 weeks. Early on in my diagnosis and struggles tapering off of prednisone, my rheumatologist suggested keeping a daily dosage and pain log tracking how I felt on a scale of 1 to 10 with the pain. If the pain I was feeling in the morning was 2 or less when it was the day to taper to the next lower dosage, I tapered down. If was more I stayed at the current dosage a few more days to see if it got better. If not, I went 1/2 mg higher.

Can you share a little more about what you mean by no Adrenalin symptoms and ending back up at 2mg dosage? Also, have you discussed tapering down with your rheumatologist or doctor to see if they may have some suggestions for you?

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Replies to "Hello @ingekunga, Welcome to Mayo Clinic Connect. The 6 months of back and forth between 1..."

Hi john I have been on pred a year and a half my going downhill .5 at a time was doing well. When I went from 1.5 to 1 I slept couldn’t get up dizzy I’d forced etc. I went back up to 1.5 band after couple of days better. My Gp said adrenals not producing cortisol. It put me into a higher pain level so went back up to 2 ok on that. I would like to go down again. One specialist said to go down . 25 at a time and the rheumatica clinic suggested varying the dose like 2 one day then 2.50 the next add no back again. I like your pain level idea - though I do have a problem deciding as I had arthritis in thumbs before pmr so what is age and arthritis and what is pmr on rise. It’s great to have people to chat to.