← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@ingekunga

Interested in the 6 month from 1mg down I got to 1 but then had like no Adrenalin symptoms ended back up on 2 wondering how to get down again ...

Jump to this post


Replies to "Interested in the 6 month from 1mg down I got to 1 but then had like..."

Hello @ingekunga, Welcome to Mayo Clinic Connect. The 6 months of back and forth between 1 mg and 1/2 mg prednisone was after 2-1/2 years of being on prednisone starting at 20 mg dosage for my PMR diagnosis. My Mayo rheumatologist suggested slower tapering off by trying to go down by 1/2 mg every 2 weeks. Early on in my diagnosis and struggles tapering off of prednisone, my rheumatologist suggested keeping a daily dosage and pain log tracking how I felt on a scale of 1 to 10 with the pain. If the pain I was feeling in the morning was 2 or less when it was the day to taper to the next lower dosage, I tapered down. If was more I stayed at the current dosage a few more days to see if it got better. If not, I went 1/2 mg higher.

Can you share a little more about what you mean by no Adrenalin symptoms and ending back up at 2mg dosage? Also, have you discussed tapering down with your rheumatologist or doctor to see if they may have some suggestions for you?