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@arribasally

I'm new to this group and am glad to be part of a discussion by people that actually have PMR and know what it is like to live with this. I was diagnosed in January 2021, primarily by my own research online and mentioning it to my primary care physician, then by a rheumatology specialist. At this point I could barely walk, couldn't drive, barely could comb my hair. I initially was put on 20 mg. prednisone, which relieved my symptoms within 48 hours. I am currently on 10 mg. prednisone daily and 300 mg. hydroxychloriquine daily but am having a lot pain in my upper inner thigh. Getting up from sitting is agony and walking if very painful. Mild pain in neck and shoulders also but is manageable. I did increase prednisone to 12.5 mg. this morning so will see if that helps.
Does anyone have experience with turmeric helping the inflammation? I tried it but didn't see much difference. I'm hesitant to try any OTC anti-inflammatory remedies as you never know just what is in them.

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Replies to "I'm new to this group and am glad to be part of a discussion by people..."

Hello @arribasally, Welcome to Mayo Clinic Connect. One of the big problems a lot of us have when we are diagnosed with PMR is trying to taper off of the prednisone too quickly. Each of us are different but the name of the game when tapering off of prednisone is to listen to your body and not go down too fast. Since you were diagnosed in Jan 2021 and started at 20 mg prednisone and are now at 12.5 (up from the 10 mg) did the pain show up when you dropped to 10 mg or had you been at 10 mg for some time? Did your rheumatologist suggest a specific tapering schedule?