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← Return to COVID vaccines and neuropathy
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Hello, thank you for starting this discussion - it has helped me a lot personally - I never had problems with Neuropathy or Eryhtromelalgia and after my first shot started to feel something and after the second it has developed full blown. Went to my primary care who is not interested aka overwhelmed and and a dermatologist who stated it could be EM or Neuropathy. The pain and discomfort are constant and my life is completely changed. I am in month 3 now of this debacle and I know some of you had it even longer. Is there any hope this will get better or are we stuck with this now? My life from "before" looks like paradise and I pray that a little will come back. What are your remedies to this? I can see a Neurologist in July - the good ones are all busy - I am in Houston - maybe there is something in this group that is also from the Houston area and give me some suggestions on who to contact? Mine is mainly in the feet and I have no real answer on how to make the pain go away other than cooling them - I used to walk 3 miles a day - Now I can't even leave the house - how do you handle your daily life? Sorry about the long "rant" but I am looking for ideas. Best wishes to you all
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To Revisl, I feel for you n all the rest. I use herbals n Xtra vitamin supplements to deal with th neuropathy. Mine is very severe but I follow neuropathy sites to get info
Evening primrose oil 1300 mg 3-4 / day, St. John’s wort 1-3 ea day , kava 700 mg 3 x / day. I also do some amino acids n high potency B complex. I also started looking at homeopathic add-ons because med changes sometimes don’t cover th pins n needles or some don’t cover th nerve pain itself. Voltaren gel n any numbing lotion /cream also helps.
I wish all of you luck because neuropathy is very underserved in our medical fields. My pain doctors are great but for me only very strong meds help n our gov. Has decided we don’t need them. It used to b we were judged on our own actions.