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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@cue

Hi All, I started this discussion and want to thank everyone for sharing their stories. I had the J&J vaccine three weeks ago and so far there has been no change in my neuropathy. Everyone is different and that may not be the experience for other people.

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Replies to "Hi All, I started this discussion and want to thank everyone for sharing their stories. I..."

Hello, thank you for starting this discussion - it has helped me a lot personally - I never had problems with Neuropathy or Eryhtromelalgia and after my first shot started to feel something and after the second it has developed full blown. Went to my primary care who is not interested aka overwhelmed and and a dermatologist who stated it could be EM or Neuropathy. The pain and discomfort are constant and my life is completely changed. I am in month 3 now of this debacle and I know some of you had it even longer. Is there any hope this will get better or are we stuck with this now? My life from "before" looks like paradise and I pray that a little will come back. What are your remedies to this? I can see a Neurologist in July - the good ones are all busy - I am in Houston - maybe there is something in this group that is also from the Houston area and give me some suggestions on who to contact? Mine is mainly in the feet and I have no real answer on how to make the pain go away other than cooling them - I used to walk 3 miles a day - Now I can't even leave the house - how do you handle your daily life? Sorry about the long "rant" but I am looking for ideas. Best wishes to you all