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DiscussionAt a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Replies to "It sounds like a minefield, hopefully you'll have a better understanding after your consultations. I'll try..."
Hello, @change25, @johnbishop, @becsbuddy, @athenalee, @lacy2 and all......John Bishop is on top of the research on a lot of the supplements, quality, etc. Each of us who've shared with you are dealing with some or most of your symptoms, but since we're not physicians, we're patients like you, we can support and share, but not advise.
I have most of your symptoms and have been dealing with them for over 40 years, I urge you to see a good rheumatologist and he may well refer you to a neurologist. I have several autoimmune diseases, like @athenalee with Sjogren's, Sarcoid, and others....but, you may have something entirely different. The rheumatologist is key as he deals with autoimmune diseases and a lot of strange diagnoses like this.
Also, let me reiterate what Becky and John and Colleen said.....seeing doctors at a large hospital or clinic like Mayo or Cleveland or Mass or whatever can be very important for the right diagnosis and to get treatment begun. Then, at or near home, you have the support network of doctors who can keep everything going smoothly.
I live in a city in Florida near Mayo Florida, so don't have the challenges you do about getting to physicians.
Hopefully, you see the new doc soon and he gets the testing started and you begin to get answers.
Blessings, and may you receive answers and peace. elizabeth