@karen31 Karen, I have also been dX with EDS by a couple (actually 3) doctors. But the only real way to check the possibility is to go to : https://www.omim.org/entry/Ehlers-Danlos Find the Syndrome and/or Gene number(s). Order a genetics Whole Genome Sequencing Analysis from Nebula, Apollo, Sequencing, LivingDNA or one of the other genetics analysts, and see if you have one or more of the EDS numbers. If you do not, then you do not have the disease. I have at least one of the genes, but so far I can only find the one. So EDS is possible, but not yet proven.