← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
@johnbishop

Hello @golfbarmie, Welcome to Mayo Clinic Connect. Thank you for sharing your journey with GCA and PMR. My PMR is currently in remission but my rheumatologist was always concerned about the possibility of me also having GCA. When my PMR was active he was also checking me for symptoms of GCA. I've had both Pfizer COVID vaccines but fortunately no flares in my PMR.

There are a few other discussion for GCA that you might be interested in:
- Giant cell arteritis: https://connect.mayoclinic.org/discussion/giant-cell-arteritis-20c716/
- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica): https://connect.mayoclinic.org/discussion/temporal-arteritis-1/

Have you tried going down in your prednisone dosage by 1/2 mg? I had trouble tapering below 1 mg for my first occurrence of PMR and my rheumatologist suggested splitting 1 mg tablets to see if that helped tapering. So I went back and forth between 1 mg and 1/2 mg for six months before I was finally able to taper off with only minimal discomfort on my pain scale.

Jump to this post


Replies to "Hello @golfbarmie, Welcome to Mayo Clinic Connect. Thank you for sharing your journey with GCA and..."

Thanks for your reply. I have tried all sorts of trickery to drop below 3mg but am ok with 3mg It doesn't worry me though my rheum. doc is not happy at my attitude.
I am more concerned now with the way Moderna caused a big flare up. I am not given to react the way I did with a jump to 10mg pred. The question of course is when someone is taking pred do we have protection from Covid after the vaccine. And if one reacts the way I did by upping the Pred is that making efficacy lower.
So far I have not come across any answers here. Tomorrow I call my rheumatologist and to be honest I will be surprised by an answer. This is all new.