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At a loss, multiple consultations still no answer...any idea?
Autoimmune Diseases | Last Active: Nov 28, 2023 | Replies (338)Comment receiving replies
Have you been tested for Sjogren’s Syndrome? I’ve had these symptoms and other neuropathy issues and intense pain developed over the past five months. I saw a neurologist and he had labs done to test for a range of neuropathy causes, including autoimmune. I have Sjogren’s and possibly some other disease requiring additional testing. But at least I have some answers. Best wishes! And don’t give up on your pursuit for an answer!
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I'm glad you've finally managed to get some information. The issue is that near me there are very few specialists that deal with these types of issues. I've been able to see general MD's who've been unable to diagnose me dispute noticing changes in my appearance. I'm 90% sure that it is some type of connective tissue disease... I'm awaiting to see a rhumatologist but given the shortage and covid situation it will be awhile. The fatigue and pain has noticeably increased, along with changes in my face. I can only hope that it will stabilise and that it doesn't continue to progress.