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Anyone been diagnosed with arachnoiditis after spine surgery?

Spine Health | Last Active: Sep 6 4:23pm | Replies (179)
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@colleenyoung

Hi Anma, welcome. I'd like to connect you with fellow members @bkruppa @qball2019 @janetsue @jelizabeth and others who know first hand about managing arachnoiditis and pelvic pain.

You may also be interested in this related discussion in the Spine Health group (https://connect.mayoclinic.org/group/spine-health/) started by @arannek72
- Arachnoiditis: Looking to talk with others https://connect.mayoclinic.org/discussion/arachnoiditis/

Anma, are you in the care of a pain management specialist?

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Replies to "Hi Anma, welcome. I'd like to connect you with fellow members @bkruppa @qball2019 @janetsue @jelizabeth and..."
kenyalama | @kenyalama | Apr 24, 2021

Hi Colleen,
Thank you for your reply.
I am under the care of many specialists including neurosurgeon, neurologist, rheumatologist and more. I suffer not only from arachnoiditis and pelvic floor dysfunction ( for a long time) but also from CRPS, relentless Trigeminal neuralgia ( 2 MVDs, cyber knife and now dilaudid intrathecal pump and oral anticonvulsants etc
I was also diagnosed with Rheumatoid arthritis and Hashinito’s disease
I have to use a wheelchair for long distances
It’s so good to be able to chat about this!

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