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Almost pure blood and blood clots in urine

Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)

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@rosemarya

@so1frustrated, I think that you are doing the right thing to go ahead with the tests in May that you n had previously questioned. You have been enduring this repeated blood in urine for long enough with unsatisfactory results.
Although you have mentioned concern about the possible results, and the financial concerns for testing, as a mother of 2 sons, I want you to be able to return to your normal life.
Ask to speak with a social worker about financial resources.

My thoughts and prayers are with you.

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Replies to "@so1frustrated, I think that you are doing the right thing to go ahead with the tests..."

Rosemary, thank you for following this; it helps me to know I can come here. I am going to ask my NP Wednesday for a referral (hopefully "urgent") to a nephrologist/internal medicine doctor a little closer to home then the urologist, so will be getting both input. I am scheduled for the CT urogram Monday May 3 (and 2nd cystoscopy May 11, but will hold off on that one if I have to based on what the urogram shows) and will ask for appointment after the CT so that he will have everything done so far. The urologist is so bent on trying to find cancer (which is not a bad thing), but afraid he might be missing other possibly crucial things. I had applied for Medicare in North Carolina, but sadly make about $20 above the income limit for any help. If things come to worse, my family may be able to pitch in to help, as well as a friend. Thank you for your prayers and I too want to get back to a "normal" life. Sadly I just today learned my beloved sister in law, who is my same age and has been on antibiotics off and on for recurring bladder/kidney infection, is now in hospital for total colon infection. Praying for her especially as this is a very dangerous thing; also praying that she can get in with a nephrologist soon also which her doctor said she should contact one. Thank you for following this and giving me some input ....