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@bnthorson

I took amikaycin first, had bad side effects, then tried Arikayce. (The wait on Arikayce was due to financial) after paying 2500$ US, I took 4 doses and my throat started swelling. I was surprised no one followed up, even though I told the distributor, so there is probably no record of my side effects. To make it worse , I have 24 unused doses of a very expensive medication. I would love to give it away, if someone lives close enough we could drive, so far no luck.
Meanwhile I am now on the 3+Clofazimine. Side effects are very manageable.

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Replies to "I took amikaycin first, had bad side effects, then tried Arikayce. (The wait on Arikayce was..."

@bnthorson, I am in New Zealand unfortunatly. Good to know the clofazimine is going well. Take care