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DiscussionAlmost pure blood and blood clots in urine
Kidney & Bladder | Last Active: May 15 9:54am | Replies (61)Comment receiving replies
Replies to "Rosemary and others, just to update....the bleeding and passing clots started again so I saw my..."
@so1frustrated Sounds like you have either what I have or something similar. Have you had a genetic analysis? Even the $70 version might tell you what you need to know. Mine uncovered many deleterious genes and syndromes, including Gelsolin, RyR2, FKTN, a bunch of leukemias and anemias, and many other things. It appears the GSN (Gelsolin) may be the buggar here. Seems my sphincter has been invaded by the GSN and some of its helpers. They have leatherized and solidified the sphincter muscles to the point that I cannot release that valve without force from a heavy plastic catheter, which I get from 180 Medical. It is also making a mess of my skin, nerves, heart, system valves everywhere, etc. I bleed up to 1/4 cup of clots and considerable un-clotted blood almost every day. The doctors don't have a clue outside my genetic work. A neurologist and/or oncologist might help you. I had my work done by several companies, including Ambrygen, AncestryDNA, Sequencing.com, LivingDNA, Nebula, and a few others. Eventually I received an "Expression Atlas" which told me how many genes of the GSN were impacting various sites in me. 53 sites, and about 10,000 genes, looks like. And, along with this, I have a bunch of others not involved with GSN, including mis-guided Platelets, anemias, leukemias, etc.