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← Return to COVID vaccines and neuropathy
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Good afternoon - while I am not happy that you are suffering at least I feel I have found a home. After being administered Gadavist contrast for an MRI I had extreme pain in my left leg for about 20 minutes - it was a 12 in a chart out of 1 to 10. It was breathtaking - it subsided but my feet started to act weird, tingling, hot and burning at times. Then I got the first Modern shot - and it got real bad - I started to go to my PCP but he was/is clueless and not interested other than suggesting Curcumin. Went to a dermatologist who thought it is EM - I then started to educate myself joined this forum and others on FB and then got the second Moderna shot - which made it so much worse - I spent days and nights crying out of pain. I cannot take Gabapenting, Cymbalta, Lyrica - I handle all medications very poorly with strong side effects. So I got some compounded creams that I experiment with - and it seems it gets more manageable. I think the pain after the Gadavist was nerve pain and triggered some Neuropathy in my feet and Moderna made it worse. I think I might have a form of Neuropathy and Erythromelalgia - anybody can relate to this story sad story? Any encouragement or your self help stories would be welcome.
Revi
Replies to "Good afternoon - while I am not happy that you are suffering at least I feel..."
I have a list of allergies a mile long, many with anaphylaxis as a reaction, including the three you mentioned. I have small fiber neuropathy in both feet as well as Complex Regional Pain Syndrome there. I have used Lidoderm Pain patches on both feet, also lidocaine-prilocaine cream. My pain management doctor has done epidurals and I am scheduled for a Radio Frequency Ablation to the sural nerve. I have multiple spine issues from neck to tail bone, including having a spinal cord stimulator installed in 2012 and a new one in 2018. Together we decided I should not get the vaccine. I live alone, my husband died in January of 2020, my one daughter does my grocery shopping, the only places I go to are doctor offices so we thought the lack of exposure to virus was pretty slim. After reading what you all have gone through I am very grateful for that decision! My prayers for you who are suffering. May just the right help be on its way.
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Hi. Did you have your MRI and vaccine close to each other?