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How do you manage daily life with IBS-D?

Digestive Health | Last Active: Oct 30, 2022 | Replies (182)

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@rits

I'm so sorry you are going through this and I hope you can get some help soon. I had radiation for endometrial (uterine) in 1995. I had episodes of diarrhea starting about 10 years later. I told the doctors that I was sure it was from the radiation but just like you I was told it had healed. During the years I had a lot of polyps so I had colnoscopies every 2-3 years. In 2015 exactly 20 years after the first cancer a Colonoscopy discovered a malignant tumor in my colon . Genetic testing concluded that the cancer was caused by the radiation. The surgeon removed almost 2 feet of my small bowel in addition to the almost one foot of the colon where the tumor was. He never told me that he would remove anything other than the tumor and margins around it. When i asked why he did that he said it was "funky " from the radiation and wasn't doing me any good. I had tried to tell him that I had a lot of radiation and my system was a mess but he said it was a long time ago.

Since the surgery I have episodes where stuff shoots out of me. I have cramps snd terrible gas and gas pains. I eat a lot of white rice and my activities are limited.

However I am not incontinent and am so sorry that you are. I am 78 and I have a Colonoscopy every year.

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Replies to "I'm so sorry you are going through this and I hope you can get some help..."

@rits Seems for every medical problem or issue fifty percent turn out "ok" and fifty per cent not... well, generalizing of course. With due respect to most doctors, I must say that some of my illnesses mental and physical were NOT helped by the doctors I had. I knew in my heart I had cancer of cervix as years ago even in my Readers Digest Health Book listed my symptoms which I had,and my GP said it was a hygiene problem - I will never, ever forget it, he said it 3 times. Retired now.
So left him and next dr i saw, female, new to City looked inside vagina: said, and this is the truth: I cant see anything!! By the time I saw specialist months and months later he checked me and I bled on table before going back to work: he said, need d and c as soon as possible... his receptionist booked me for 2 months time. Iwrote a letter, they never answered. I was a coward and should have gone back into the office and reminded them of the urgency or gone to emerge and sat there!! Needless to say by the time i had the d&c and diagnosis was a Stage 2. More sadness to the story but I must say that similar things happened to me with other doctors .. I know they make mistakes and I realize it can be difficult to diagnose sometimes, but time after time.....being passive in nature I just accepted what I often felt was wrong prognosis etc. but always was intimidated by doctors and hairdressers! (I also had D&C years later and woke up with appendix taken out, dr said, oh must have had problems down there... I hadn't). ONE YEAR LATER I found out he had punctured my uterus while doing D&C and tubal .... and I could go on. I would recommend we SPEAK UP when feel something is wrong but, at 77, was raised to keep my mouth closed and not make a fuss. See where it got me??? I too am on limited food intake and I so miss all those fruits and vegetables! Hopefully the women of today speak up more than we did, or were allowed to years ago.p.s. I know there are a lot of "good" drs out there: thank you!