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Any Optic Nerve Meningioma Patients Who've Had Surgery?
Brain Tumor | Last Active: May 13 6:52pm | Replies (110)Comment receiving replies
@pranas Last year, I had a meningioma sitting on my left optic nerve near where the nerves for both eyes intersect. I opted to get the surgery (in Sacramento) so the meningioma did not grow onto my right optic nerve. At the time of surgery, I was seeing through the middle of a black circle with little to no peripheral vision. After surgery, the black circle was gone, but it is as if someone coated my eye with vasoline. I have light perception and can make out some shapes, but otherwise I am legally blind in that eye. I am awaiting my 6 month MRI for the NS decision on whether or not I will need radiation. Even with this outcome, I would do it again. Hope this helps...
Replies to "@pranas Last year, I had a meningioma sitting on my left optic nerve near where the..."
@amomand3girls hello and welcome to Mayo Clinic Connect. Thank you for joining the conversation and sharing your experience with @pranas and the other members. It sounds like you made a great decision to avoid the growth into your optic nerve.
Will you post again with a follow up to your MRI?
I’m curious if you are able to drive? The Vaseline coating resonates with me but my vision feels like I have thin gauze over my eye. I have my first neurosurgeon appointment in two weeks to figure out a treatment plan.
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Sorry to hear about your eye but the good news is that it didn't grow. I had a surgery on 1/7/2020 to remove part of the tumor, grade II. My eyesight was also in danger, they removed a little from the tumor which took pressure off the optical nerve and now I see better/normal again. In July of this year, I will know if I will get radiation. Unfortunately, right now I am fighting with CSF leak...but it will get better!!! All the best to you....we have to be strong!!!