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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@sbm

I had a pretty bad case of COVID (although no hospitalization) a year ago. Diagnosed Small Fiber Neuropathy flared up big time while I was sick for 5 weeks. Had 1st Pfizer shot this past Sunday. 19 hours after 1st shot, felt like mac truck hit me from behind and ran over me - soon followed with 101 fever, severe body aches, severe fatigue, light headedness, and SFN burning flare - it is now 46 hours later- no fever, some body/joint aches, slight headache but significant SFN burning! Scared to get 2nd shot and scared that SFN will be permanently worse.

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Replies to "I had a pretty bad case of COVID (although no hospitalization) a year ago. Diagnosed Small..."

Hello, I'm sorry to hear that the vaccine has caused issues for you. I don't have neuropathy, but I did have a significant inflammatory flare from the vaccine (more so with the second dose.) It began to subside at 4 weeks, after a temporary med increase. Now, at two months, it is noticeable mainly when I get tired, so I will consult my primary when I see her in May. Considering that I longed to get back to my life and was considered high risk for severe Covid, I consider this a small price to pay.
Sue

Hello @sbm and welcome to Mayo Clinic Connect. I see that @sueinmn has joined the conversation and shared her experience with the vaccine and flare. As @chezpl69 mentioned recently, you should report your reaction through VAERS to provide awareness.

I am sure you are nervous to get your 2nd shot so am wondering if you've made an attempt to reach out to your Neurologist for a consult on what he/she recommends?

I am having severe burning pain also, now 2 months out. Did you get your second dose? Did it make it worse?