← Return to I would like insight from others who care for someone with lewy body

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@wifehenry

My husband 73 years old and his brother died of LBD in 2017 and according to what i have read or am reading and attending the support group he has symptoms such as Yelling out screams, sleepless night, vision is very poor, walks as if he is going to fall, not sure of the steps he is taking, does not want a question he has ask to go into details, calls banks every day to find out how much money he has and what checks were processed, goes to grocer to shop and brings home all items he thinks he MIGHT eat. Vision is very poor needs to have cataracts removed so now eyes are very dry so they are being build up. His doctor tells him at every visit there is nothing wrong with him, He will not order any test for him and he does not do any test himself. My husband had 100% confidence in his primary care so I have both against what I observe. What recourse do I have. My husband has the temp at 82 degrees because he is cold, he has purchased about 6-8 space heaters so that he can keep warm. Today it was so hot in the house I went for a drive so I could cool off. I can not share anything with him that is positive or negative he tells me he already knew that, sad for him and me. What recourse do I have for him?

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Replies to "My husband 73 years old and his brother died of LBD in 2017 and according to..."

Hello @wifehenry and welcome to Mayo Clinic Connect. I am sorry to hear of your husband's symptoms. This sounds very difficult for you both.

Is your husband currently under the care of a neurologist? If not, you might request a neurological consult. This would be a good first step.

In the meantime, I would like to invite you to an online event about LBD that is being hosted by Mayo Clinic on May 3. Here is the link to find out more information and to register.
https://connect.mayoclinic.org/blog/dementia-hub/newsfeed-post/lewy-body-dementia-what-are-your-questions/

As you can see, you can post questions that can be addressed by the presenters. I hope that you can attend.

I look forward to hearing from you again. Will you post again with an update?

If you can, go to a specialist. You're seeing a lot of symptoms and the doctor is a liability for your husband. Some medications may help these symptoms but the doctor can't be in denial. Good luck.