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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 14, 2023 | Replies (2164)

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@jonathanc

I have had PN for 5 years following a serious viral illness. The symptoms have been stable and pain managed with assistance from 150 of Lyrica per day. On 12 May I got my first shot of the Pfizer vaccine. All good for 4 days then I began to experience intense burning in feet and hands (just like 5 years ago) and the skin on my feet is peeling (just like 5 years ago). Almost a week later it is still getting worse despite tripling the lyrica dose. My immune system has overreacted to the vaccine and is clearly now attacking my peripheral nerves again. Regretting that I got the vaccine (since my risk of contracting covid is very low) and am reluctant to get the second dose. This could just be related to my form of PN BUT there needs to be more investigation and advice to people with PN on the risks of taking the vaccine.

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Replies to "I have had PN for 5 years following a serious viral illness. The symptoms have been..."

So true! Almost exactly my experience!

@jonathanc thank you for sharing your story and welcome to Mayo Clinic Connect. There are other members in this thread who can relate to your experience such as @hurannette @milly93 @sueinmn and @depueman who have all recently shared in this discussion.

Also, @becsbuddy shared a link in her comment above that you also might find of interest. Here is the direct link to her comment: https://connect.mayoclinic.org/comment/595326/

Have you consulted with your neurologist since receiving the vaccine?