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Ehlers Danlos Syndrome: Can't get diagnosed
Chronic Pain | Last Active: Apr 25, 2021 | Replies (5)Comment receiving replies
@dianeehlinger Welcome to Mayo Clinic Connect, a place to give and get support. It sounds like your illness is causing you a great deal of issues.
Members @lovemyfamily2003 @rois4richo @healthhopefreedom @dandl48 @needrelief @jthigpen @jthigpen have discussed this topic in the past and may be able to offer support and suggestions
May I ask what your doctors/providers suggest regarding a ehlers danlos syndrome diagnosis?
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Sadly, so far none of my physicians have recommended further studies. I feel as though I am completely on my own. I do have an appointment with a different rheumatologist in mid June. Maybe she will be the one to finally really listen to me and to look at the whole picture. Modern highly specialized medicine has its drawbacks. Nobody puts all the pieces together.