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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Nov 21 5:21pm | Replies (9354)Comment receiving replies
@pfists So glad you found our Forum, you have had a tough time of it! You are SO lucky to have gotten an appointment with Dr. Aksamit at Mayo Clinic .. he is just wonderful .. you are going to love him .. you will be in good hands! I also had MAC abscesses and Bronchiectasis .. he will know just what to do! I would encourage you to read the past pages of our Forum .. you will learn SO much about our shared disease .. meet some really wonderful and supportive people! We are all this same shared journey together. Hugs to you! Katherine
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@windwalker, Terri, I do NOT think ANY good doctor should be offended if you RESPECTFULLY say:
Have you heard or are you are aware that Mayo Clinic has a wonderful support system for all kinds of medical issues including lung diseases? I was lucky enough to find one for my MAC disease! It is called Mayo Clinic Connect MAC & Bronchiectasis. This particular MAC Forum is Mentored by a woman by the name of Katherine who has been seen by Dr. Timothy Aksamit Mayo Clinic in Rochester Minnesota. She has so repeatedly spoken highly of him that I chose to go to the 2017 NTM & Bronchiectasis Physician/Patient Conference Friday, May 19, 2017 at Georgetown University in Washington, D.C. to hear him speak. I was very impressed.
Doctor, may I REQUEST that you consult with Dr. Aksamit on my complex medical case since I know that Mayo Clinic is FAMOUS for their doctors working as a team effort in working with patients. After dealing with the medical community for over 20 years without a good resolution for my health .. this is why I came to Mayo Clinic .. you are "mecca" .. I know I am in the right place .. and that you will do the right thing for me!
Terri, practice your little speech until it sound natural .. then DO IT!! Keep me posted on how it goes! Remember, Girl, YOU are your own BEST advocate! YOU are the only one who cares about you body as much as YOU do .. TAKE CARE OF IT! Hugs! Katherine
All my Drs here at home were glad I was going to Mayo as they were stumped about my high fevers. It was a relief to me to have the second opinions as well knowing my drs were on the right track. Drs. Should want to help patients in anyway possible. I just phrased it as I was wanting a second opinion.
@jillnc .. Jill, you are SO correct! Good doctors will NOT be offended by a request for a second opinion! In my opinion only a doctor who is insecure will! Thanks for jumping in with a confirmation of your experience! Hugs! Katherine
<br><br><br><br><br>Thank you Katherine. I would have no problem asking these things, it's just <br>that my pulmonologist IS a Mayo doctor. <br> <br><br>
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<br><br><br><br><br>Hi Katherine, I wonder if Dr. Askamit would treat me any differently than <br>my Dr at the Jax Mayo. Will have to discuss with my dr when I see him in June. <br>-Terri M.<br> <br><br>