There are many issues in this thread that I’d like to comment on but don’t be freaked out by my story because things are better now than when I was first diagnosed with SFN in 2008.
My neurologist did labs and found my IGG was 2100 & normal should be below 1600.
He was concerned that it could be multiple myeloma, which could cause neuropathy. Well, he was right! This is something that should be checked by all reading this when looking for a possible cause of your PN.
What happened next? I followed up with an oncologist & was monitored every few months as the disease progressed. I never felt any additional symptoms of the disease. In 2019 my PN was always active & annoying but I developed serious back pain & additional pains down my legs. Turned out that I needed fusion of my lumbar vertebrae L2,3,4 & 5. However, this surgery was not caused by the multiple myeloma. In September 2020 my IGG went to 7500 and that was high enough to start treatment. I had no other symptoms but my PN was very bad...pain, numbness & stiffness. I was not able to do much exercise but went to PT for some relief. I began treatment with immunotherapy & chemo.
The chemo really increased my PN to a point that I couldn’t take it so it was stopped after 6 months. My labs however, were all improving & my IGG went down to 1500 which was amazing. Now I just get immunotherapy once a month & I have PT for balance & strength training. I started riding a stationary bike & started riding my road bike again. I’m now taking 22 mile rides here in Miami, Florida & hope to get up to 30 miles soon again.
So, how’s my PN? Tolerable with the help of Lyrica, which I’m trying to reduce, & medical marijuana- tincture, topical, gummy’s- THC & CBD. Well, I’m good now & hope to stay well
& glad that I found out about my IGG 13 years ago. Have your IGG checked to rule out MM.