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Pins and needles during exercise?
Neuropathy | Last Active: May 9 1:33am | Replies (94)Comment receiving replies
Good morning @dremindeniz. Welcome to Connect! It is pretty wonderful to be in touch with folks from different places with the same symptoms. The other location issue is altitude. I lived for 20 years at 6,000 ft. And I was a member of a walking group that traveled all over on Inn to Inn adventures. According to my primary and only medical clinician in the village, living at altitude is very good for your heart and cardiovascular system.
Tourists used to come into my gallery complaining about being tired and out of breath. I would tell them to give it a few days before trying to climb up "Tahquitz" (11,000 ft).
And for those with a TKR or two.....remember it is o.k. to climb up, it is not o.k. to climb down.
And here is another issue. Barometric pressure. So anything over 30 is great and keeps your pain at bay a bit.
Unfortunately, there is another issue and that is lack of moisture. My ophthalmologist told me that the only thing that would help my dry eyes syndrome would be a move to a rainforest. So here I am in MN and my eyes are much, much, better.
Yes, where we live and how we live are very important elements for our health.
May you be free of suffering and the causes of suffering.
Chris
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There are many issues in this thread that I’d like to comment on but don’t be freaked out by my story because things are better now than when I was first diagnosed with SFN in 2008.
My neurologist did labs and found my IGG was 2100 & normal should be below 1600.
He was concerned that it could be multiple myeloma, which could cause neuropathy. Well, he was right! This is something that should be checked by all reading this when looking for a possible cause of your PN.
What happened next? I followed up with an oncologist & was monitored every few months as the disease progressed. I never felt any additional symptoms of the disease. In 2019 my PN was always active & annoying but I developed serious back pain & additional pains down my legs. Turned out that I needed fusion of my lumbar vertebrae L2,3,4 & 5. However, this surgery was not caused by the multiple myeloma. In September 2020 my IGG went to 7500 and that was high enough to start treatment. I had no other symptoms but my PN was very bad...pain, numbness & stiffness. I was not able to do much exercise but went to PT for some relief. I began treatment with immunotherapy & chemo.
The chemo really increased my PN to a point that I couldn’t take it so it was stopped after 6 months. My labs however, were all improving & my IGG went down to 1500 which was amazing. Now I just get immunotherapy once a month & I have PT for balance & strength training. I started riding a stationary bike & started riding my road bike again. I’m now taking 22 mile rides here in Miami, Florida & hope to get up to 30 miles soon again.
So, how’s my PN? Tolerable with the help of Lyrica, which I’m trying to reduce, & medical marijuana- tincture, topical, gummy’s- THC & CBD. Well, I’m good now & hope to stay well
& glad that I found out about my IGG 13 years ago. Have your IGG checked to rule out MM.