Hi, I don’t know if someone mentioned this already, but if you are on Facebook there is a group called “Arthrofibrosis Support”. Members of the group share information about treatments for scar tissue and arthrofibrosis after knee surgery. The group is a great resource, and I’ve learned a lot.

I have been in PT on and off (mostly on!) for almost four years for three knee surgeries (including 2 TKA’s.) I’m a scar tissue generator. Despite my intense pain upon bending my left leg, swelling, burning, etc. my orthopedic surgeon kept telling me that my knee was fine. I was able to get into a Pain Management program at a local university. Due to allergies and drug interactions I’m not able to take any pain medication except Tylenol. It has been a very bad few years. I’m in PT once again getting ASTYM treatments and new strengthening exercises that don’t cause additional pain. My new physical therapist said that it’s not good for me to have more intense pain and inflammation because that causes additional problems. My surgeon previously said PT means Pain and Torture, and my old PT was extremely brutal. It just caused more scar tissue to form.

Please don’t give up. I am now 52 and have developed other health issues due to these four years of pain. Keep fighting for your health. It can be frustrating, depressing, and draining, but there is help. Try that FB group. It has given me hope and the reassurance that I’m not the only one. There are answers.

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