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COVID vaccines and neuropathy

Neuropathy | Last Active: 6 hours ago | Replies (2169)

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@cosette1968

I have not been diagnosed with an autoimmune disease but I am not ruling it out. At one point, decades ago, I was told I had RA due to a blood test, then I was told I didn't. I also have a chronic form of leukemia ( not autoimmune i realize). I've had all sorts of "issues", some big, some small, through my 75 years. I wouldn't discount autoimmune disease as one of them.

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Replies to "I have not been diagnosed with an autoimmune disease but I am not ruling it out...."

It’s astounding that there are so many autoimmune diseases out there, most happen to middle age women, and many relate to each other. Plus, symptoms often are ignored or attributed to something else. I was diagnosed with Raynaud Syndrome and my primary said to “wear gloves.” Had she correlated it with other symptoms I had, including numb and stiff feet (“high arches”), severe itching/dry skin (use lotion), and anemia (“take more iron”) and sent me for blood analysis, the second autoimmune disease I have, Primary Biliary Cholangitis, could have been diagnosed. Instead, by the time PBC was diagnosed, it had caused Stage 3 liver cirrhosis.

A neurologist I recently saw thought my neuropathy is probably due to PBC or a related autoimmune disease. The lab analysis he ordered seems to indicate I have Sjogren’s as well; which can be secondary to PBC and does cause neuropathy and other issues.

I think it’s way pass time that comprehensive blood work become the norm when diagnoses do not lead to a solution for the symptoms presented. And, if you’re not satisfied with your primary...insist on seeing a specialist!