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Member Neuropathy Journey Stories: What's Yours?
Neuropathy | Last Active: Nov 23 5:30pm | Replies (573)Comment receiving replies
I’ve been a neuropathy victim for quite a few years. It’s to the point I’m not sure how much longer I can handle the pain. I first noticed it with my left foot. I told my doctor it felt like the numbness from scar tissue. Like from stitches. My doctor didn’t provide any feed back. Many years later it’s progressively gotten worse. I can’t walk very far with out my calves becoming so painful I need to stop and wait 5 or so minutes to rejuvenate them. The numbness is half way up each calf and well into my fingers on both hands. The pain becomes so bad at work I can’t focus or concentrate. The bathroom is so far away from my office I wait until the last minute. I’m embarrassed and my balance is all over the place. I just want to talk with someone that understands. Lonnie
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Good evening @lpiper. Welcome to Connect. It appears that you have been challenged by neuropathy for quite some time. And I do agree with you, it does progress in some of the worst ways. I have a request. Can you remember the progression of pain in different parts of your body. Before your calf involvement did you have sharp flashes of pain in your legs at dawn...did your abdomen feel like it was on fire at times....sort of like one of the glass fireplaces might feel.
Would you be able to share your current medication and treatment routine? What have you found most effective?
How is your energy level? Do you have bouts of fatigue at work? Have you been able to exercise or just take a walk?
We have some very creative members here who have explored options and shared their stories. We would love to hear yours so we know what foot to start on.
May you be free of suffering and the causes of suffering.
Chris