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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
I have also been diagnosed with MAC. Started one treatment, but in so doing I was taken off my blood pressure medicine and it went out-of-control. Was in the hospital for several days. Scared to try again.
Replies to "I have also been diagnosed with MAC. Started one treatment, but in so doing I was..."
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@annie112 .. Annie, welcome to our Forum. This must have been so scary to you! My questions to you:
1. when you were diagnosed did you work with an Infectious Disease doctor?
2. did this doctor consult WITH your heart doctor?
In my opinion .. I am NOT a medical doctor .. BUT I feel there is ABSOLUTELY NO reason you should have ended up in the hospital IF you had been properly advised in your MAC treatment!!
PLEASE do NOT be afraid of the MAC treatment .. NOT BEING a medical doctor .. I still feel confident that with PROPER medical advice there is absolutely no reason you cannot be treated for MAC PLUS a heart issue!
PLEASE seek out a GOOD Infectious Disease doctor. ASK: "How many MAC patients have you treated in the past 12 months". With this information you can get proper advise. PLUS start reading past pages of this Forum .. it is FILLED with good advise AND great support from wonderful people! Do NOT feel afraid .. we are ALL here for you on this shared journey! Hugs to you! Katherine