Let's try this again - I just typed a reply and it disappeared.
First, welcome to Mayo Connect - a community of people living with a wide variety of conditions, who share our experiences and try to help one another along the way.
I am sorry to hear that your hip replacement journey has been a difficult one. It is unfortunately not all that rare to suffer one or more complications - my own situation finally involved 5 surgeries for replacements and revisions, but I am happy to tell you that I have now been nearly problem free for going on 10 years.
Two suggestions for dealing with your current situation are
Locate a surgeon who deals with complex revisions. This is best done by contacting a large orthopedic practice or a teaching hospital for recommendations. If it is feasible, you may wish to contact one of the 3 Mayo facilities.
Locate a Physical therapist who has experience with revisions that include torn muscles, ligaments and tendons. These require special care and extra recovery time. My friend had to have a special girdle-like brace made to support her hip and torso during healing, which she was gradually weaned from wearing after many months. She also had over a year of PT with many progressive steps, and still does exercises every day. She is now able to walk long distances using a walker or cane (depending on terrain) with little or no pain.
This is not going to be easy - but you need to be persistent to get the help you need, and then to heal your body.
Good luck, and please let us know how you are doing.
Sue
Thank You Sue, I’ve reached out to a top orthopedic doc & I just had another round of scans, I’ll follow up with him next Wednesday, so hopefully we can get this resolved once & for all. I did have a very noticeable limp but with my physical therapist assistance over an 7 month time period I can say my limp is gone completely & I only need my cane when I’m walking a lot & my leg gets tired. My bloodwork test levels are hovering around the same #’s as when we found the first of two infections. But I’m trying to stay positive that there’s no infections & that maybe it’s just the muscle, tendons & ligaments causing the pain & nothing more.
Tammy