Hi @marier welcome to our group, I hope someone on our group will be able to help you, I live in New Zealand so am unable to help, please dont hesitate to ask us anything you need to know, this is a wonderful group of caring people.

Hello Marie, welcome I'm glad you found our forum. There is a Mayo Clinic in Jacksonville Fl. I don't know how far is it from where you live. Read the forum way back I think there is a good Dr. that knows more about MAC. We are all here for you. I will have you in my prayer. Cila

hi Marier, welcome to this site....you will find it very very helpful and supportive. Our Mentor Kate is traveling but will be back. In the meantime you will find it helpful to read over comments from the past.
there are links to helpful websites....also be sure to try to view Nationaljewish.org/videos
they have the videos from the all day workshop in 2015 and then add 2016 after "videos" to see this years.
world wide speakers....all experts in their fields....and in 45 minute segments.
NTMinfo.org also another invaluable site
happy new year coming up and welcome to the site
tdrell

I have Mac too. I live in Lake Mary, Fl<br><br>

<br><br><br><br><br>Hello Cathy!<br> <br>     Are you having it treated? If so, how?<br> <br>Terri<br> <br><br>

<br><br><br><br><br>I am beginning to think something weird is going on that so many women have <br>MAC these days.<br> <br><br>

<br><br><br><br><br>Hello,<br> <br>    I highly recommend the Mayo Clinic in Jacksonville. That <br>is where I go.<br> <br>Terri

Marie, I am also new to MAC. I am currently taking Azithromycin, Rifampin, and Ethambutol plus I just finished 14 injections (twice a week) of a VERY VERY painful Amikacin Infectious Disease says I will be on meds for 18 months or longer.
Last April (2016) I felt as if I had Pneumonia with a persistent hacking cough (having had it a few times in my life). Primary doc gave me antibiotics but made no recommendations. A week later I was in the emergency room where they took an x-ray then a CAT scan and many blood test. After the CAT Scan they came back and said both upper lungs were filled and made a followup visit with a critical care pulmonary specialist. I live in Trinity, Alabama (no were close to a major MAC research hospital) The specialist scheduled a bronchoscope where he took biopsies and did a saline wash of my lungs. He determined through the biopsy that I have MAC and have been on daily meds since July 2016. He then recommended I see an Infectious Disease specialist who seems to know more about MAC. BUt, one of the resources I have used the most and has answered many of my questions are the forums like this one and the National Jewish Hospital patient portal. Recently they added the MAC conference videos for 2016 these and others have been very helpful for me. My account currently will not let me post the link at National Jewish Hospital search for ntmvideos2016

Welcome to the MAC group, @krz4ua. We look forward to getting to know you.
Here is the link to the videos you referred to https://www.nationaljewish.org/ntmvideos2016

New members can post links once they have been a member for 10 days or have made 3 or more posts on Connect. This is a safety precaution to prevent "spammers" on Connect. We look forward to seeing more posts from you on Mayo Clinic Connect.

Kzr4ua.....welcome to our great support group....within a fewvweeks ...when she returns from vacation.....you will be greeted bynour mentor Kate.
Sounds like you have really been thru alot! But diligent about keeping up with your care and getting informed about our mutual enemy...NTM.
The videos from National Jewish Health from 2015 and 2016 Are great....
I will see DR Huitt at NJH starting on January 5th ....I applied to be a patient there in August. I was diagnosed in July with MAC after a bronchoscopy here in Wisconsin where I LIve. My only symptoms for 2 years had been a daily evening cough and thick white mucus. It took the two years to find the reason.the only good part to getting the diagnosis was that the two year mystery was solved.
I am not on treatment....wanted Dr Huitt to evaluate.tDrell