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Conflicted on taking medication

Breast Cancer | Last Active: Nov 8, 2023 | Replies (99)

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@cerwin

I was diagnosed with Stage 1 BC, Grade 2, invasive Ductal Carcinoma (IDC) with 2 small tumors in right breast. ER+PR+HER2 negative. 1 lymph node out of 5 was + for small area of metastasis. Ki 67 proliferation rate 50%, Oncotype 27, just two digits over into the “will benefit from chemotherapy” category.

I prayed about it since my Oncologist at Mayo Clinic Jacksonville had to recommend it based on the stats. I needed to make a decision and was conflicted, so I had another appt with him. I made the decision to say no to IV chemo based on my borderline stats and how challenging it would be to not have bad side effects because of current health issues in exactly the areas the chemo would hit. He understood my concerns and how my already-difficult quality of life is. He did say he would be ok with the decision, but I would definitely need hormone chemotherapy, to which I agreed, so I start on anastrozole 1 mg tonite, for 5 yrs. I also signed up for a research study on what dosage would benefit patients with ER+ tumor profile, with fewer side effects. Did your Dr prescribe depression, pain or anxiety meds? Is there another drug besides tomoxifen you could try? I know it’s a hard decision to make and I’m not saying what your decision should be; just sharing my story which may help you. I do think it’s important for you talk with your Oncologist again. Wishing you the best!

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Replies to "I was diagnosed with Stage 1 BC, Grade 2, invasive Ductal Carcinoma (IDC) with 2 small..."

@cerwin, it sounds like you have a great partner in your oncologist. Every treatment decision is so individual. May I ask what other health issues contributed to your decision making?

I wish you the best. I’m 18 mos in on Anastrozole and doing OK… mild to moderate joint discomfort mitigated by walking and yoga. It makes me feel less freaked out about future BC recurring . Many women don’t have difficulty on this medication and I hope you are one of them.

I would be interested in knowing more about the research study you are in . Is it a clinical trial? Is there somewhere I can read about it?

Best of luck to you, and all of us on this unwanted journey 🌸