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Mesenteric Panniculitis or Sclerosing Mesenteritis
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
Bill
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HugInterested in more discussions like this? Go to the Digestive Health Support Group.
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Hi Royal - I have had skin lesions associated with my MP as well, they take forever to heal. I am going to a dermatologist to see if it is possibly related.
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1 ReactionCould be a contributor.
Was just diagnosed March 15th, I'm in Belton, Mo--KC Area
Hi everyone! Has anyone discussed with their doctor or researched stem cell therapy for MP?
Hi, I'm new here and was just diagnosed with MP after 3 months of pain. My GI doctor says that he thinks too many people are being diagnosed with MP that do not have it and that it ISN'T rare which goes against everything I've been able to read thus far. My CT scan was the cause for my diagnosis and they found it without contrast because I can't do contrast because of kidney disease. I'm thinking he may be a little cavalier about my problem and I'm thinking about getting a 2nd opinion, possibly at the Mayo in Jacksonville Florida. Has anyone here been to that facility for treatment? If so, can you recommend a doctor for me?
Hi I was diagnosed through a CT scan with contrast, had and still do a pain in my right lower stomach, the doctor reading scan said I had MP. When I finally got to have a conference call with him. He does not believe I have it. He thinks it is IBS. Well he told me to taken tsp of Metamucil once a day. I still wake up with the pain or discomfort every morning. I did go about a week without it. I definitely have better stools. I hate the idea that every morning I awake with this discomfort but if I get up and walk around it starts the gas moving and I go to the bathroom, pain goes away until next morning. If you find out anything different pls let me know...
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1 ReactionWell, I'm going to believe the radiologist over the doctor, especially when he says everyone is getting this these days. I think I'm going to make an appointment with Mayo Jacksonville to get a second opinion s from what I understand it could be a symptom of something greater and I don't want to take a chance on something sneaking up on me that's worse.
Hello @floridamike and welcome to Mayo Clinic Connect. You seem motivated and interested in seeking a second opinion to rule out any additional and potential reasons for your symptoms.
You may use this link to request an appointment: http://mayocl.in/1mtmR63
Will you keep us posted?
Hi there, could you add me? I just had a laparoscopy done last week to diagnose endometriosis. On the report, I saw Sclerosing Mesenteritis as one of the diagnoses... I’m so confused what this is and would love to hear from others. Thank you!
I’m from KC too! I recently moved to Austin, TX though and that’s where I had my laparoscopy and received a diagnosis of Sclerosing Mesenteritis (and several other diagnoses).