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Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Autoimmune Diseases | Last Active: Feb 5, 2024 | Replies (97)
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@johnbishop

Hello @sarahshimek, Welcome to Mayo Clinic Connect. Thanks for sharing your experience and symptoms with Erythema Nodosum. You bring up an interesting question about the possibility of gluten being associated with the knot on your forehead. Here's some information I found that may explain it.

Skin and coeliac disease, a lot to think about: a case series: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5786986/
Excerpt - "Multiple erythematous violaceous nodules on the lower leg. ... boy presented a 1-year history of an intensely pruritic skin rash located on the trunk, members and face. ... Erythema nodosum in association with celiac disease."

Have you tried going gluten free for an extended time period as a test?

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Replies to "Hello @sarahshimek, Welcome to Mayo Clinic Connect. Thanks for sharing your experience and symptoms with Erythema..."
sarahshimek | @sarahshimek | Apr 15, 2021

Thank you, John, for your response. I do not have either DQ2 OR DQ8 copy in my DNA so all testing for celiac (coeliac?) was discontinued. I dont have a deffinate diagnoses for IBS either. I have been gluten free for 2 months now. I have not had a lump on my forehead during that time. (Do you know what they are called?) Diarrhea is better. Less frequent, but yesterday there was a hurricane in my gut again. It always starts with a wave of nausea. Diarrhea very watery
again.
EDS is also sometimes present with EN. (See @kgjd97) I dont know if the gut problems are EDS though. I need help with that most.

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