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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
Someone asked the name of the test that determines inpart what your MAC is susceptible to in terms of antibiotics- it's called a Susceptibility Panel I believe. I think most of them are sent in from all over to National Jewish and completed there. They take 8 weeks but are very important. There are many things my MAC is resistant to, so it would be a waste to take them.
Also Katherine, in have a very small area of brochiecstasis in my UPPER right lobe, very atypical as usually in lower. My pflegm seems to be from post nasal. I have no reflux, had 24 hour Impedence Test, negative. Not sure why throats pflegm, I use Mayo special nasal spray which helps. Some may be a strange habitual thing. Who knows!
Thanks
Kay
Replies to "Someone asked the name of the test that determines inpart what your MAC is susceptible to..."
Nan
The nasal spray from Mayo does not have a name. They compound it in the Mayo pharmacy and it contains Mometesaone, Ipratropium and Diphenhydramine in equal parts. You mix it yourself and keep in in fridge. It's about $85 and lasts 5-6 months using 2 times per day's. It works great.
I still have some post nasal and throat clearing but it's better. I do not have reflux the Impedance test was negative. I do think that there is a bit of "bad habit" and stresss in throat clearing. Google nervous habit throat clearing.
Let me know if you get the spray, I think it will help if you have nasal inflammation which I do.
Kay S
@kaystrand, Kay, and @nannette Nan, just to clarify since I use the same helpful Mayo nasal spray. I was told by the Mayo pharmacy that each "kit" should be considered to expire in seven days .. even if there is a bit left in the bottle. That if you use 2 squirts each nostril .. 2x per day there really should not be any left in a bottle. I also questioned if I could just carry it in my purse while traveling .. not in a cooled medication packet. Nope .. would need to put together a new kit upon arrival at the new location. Just thought I'd share what I just learned. Katherine
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Kay, would you mind sharing the name of the nasal spray that you were given. I have the same thing but had the impedence test and it showed higher than normal reflux so I'm on 20mg of pantoprazole once a day but I believe I also have post nasal drip. And I had phlegm coming up to the throat also. The pantoprazole has helped but I think a nasal spray would help even more. And thanks for the info on the susceptibility panel. I'm in SC and I will ask my pulmonologist about this in January. Nan