I recently saw there are many people with these two conditions. I had EN for 35 years, (diagnosed by a biopsy), and it went away at about age 53. It has been replaced by very sore swollen lumps on my forehead. These are different than the ED on my lower legs. Often they are in my eyebrows but also sometimes high on my forehead. Painful with pressure and movement but like the EN for me, almost no pain otherwise. And unlike the EN they are not red and hot, just swollen and sore. They also go away a little sooner and without the itching and rash. I have not been officially diagnosed with EDS but have the velvety skin and hypermobility. Also have IBS (after 40 years of chronic constipation). I have what seems to be hip dysplasia as I get older (age 61) but have less hip pain and some less diarrhea when I don't eat gluten. Also havn't had a knot on my forehead in the 2 months without gluten. Just wondered if anyone else has experienced those knots on the forehead? Also do you think the EN had anything to do with hormones since it left after menopause?