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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

Hello again, I am looking for some suggestions regarding my issues. I have a physician assistant that has been looking into my foot and ankle pain and I have been trying to ask this person questions and that person does not get back to me. I am seeing an ortho here at home who is willing to help me but due to my Myotonia they are a little nervous as they do not know much about this disease. I sent a message to the PA who is too far to see and asked what additional test they want so I can relay this to the Ortho I will be seeing and they have not gotten back to me yet and it has been 3 days. Not sure what the protocol on what to do if a medical provider does not respond to your messages. Please any suggestions would help me

Thank you
KIm

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Replies to "Hello again, I am looking for some suggestions regarding my issues. I have a physician assistant..."

@kimcvi is the PA that you have been seeing at Mayo Clinic? If so, have you been messaging on the Patient Portal with no response?