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← Return to Arimidex Pain Starting after 17+ months
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Arimidex Pain Starting after 17+ months
Breast Cancer | Last Active: Jun 3, 2021 | Replies (32)Comment receiving replies
@mjay
Hi Mjay - You are amazing staying on that particular AI for such a long time. I only lasted 1 month...the pain was so horrific. Even my daughter-in-law was concerned about me as just trying to get out of a chair and start moving was so very difficult. However, I have never been very good at drugs or anesthetics! So tried the next AI and had horrendous headaches with that. When I spoke with my oncologist, she said let's try the last one (exemestane). I've been on that one now for about a year and do quite well with it, all things considered. I had been having a rough time waking up about 3, 4, 5 times a night. However, I started taking liquid melatonin and find that I only wake up about once a night...what a difference! I tried the pill form but that did not work for me. What I have also read is if you take too much melatonin, it can cause nightmares and wakefulness. All the best to you.
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Thanks, trixie1313. I don't know about amazing...maybe I just had more estrogen in my system and it took this long for the AI to finally deplete it so that it is now kicking up more pain. If I have to stick it out on Arimidex, I will, as I think the long term benefits are worth it over not taking anything, but my biggest fear is osteoporosis because there's no turning back once you lose a certain amount of bone and then the pain is there forever. What choices we have to make...ugh! I'm so happy the melatonin is working for you. I take GABA, a natural supplement that helps me sleep better while being on the Arimidex as well so I'm able to get more sleep. I really don't want to be told to take another drug to combat the effects of a certain drug, so I'll just wait and see how things go. Best wishes to you!