Dear All, @apportee, @bruce668 .. bruce, @cila .. Cila, @cathyt .. Cathy, @coylemel333 .. Melody, @cowboy1997, @david1952 .. David, @digmeme .. Linda, @elaine .. Elaine, @flib .. Flib, @fransky, @heathert .. Heather, @hopeful33250 .. , @imeehaigt, .. imee, TeresaH, @janovr .. Jan, @justjanet .. Janet, @jillnc, @jms7,@josephene .. Jo, @judyem .. Judy, @katiemknor .. Winnie, @kaystrand .. kay S., @kwilbur .. Kathryn, @laneyk .. Elaine, @liliane .. Liliane, @lynnettehuler .. Lynn, @margaretg .. Margaret, @melissa23 .. Melissa, @mimi68 ..Linda, @Paula_MAC2007 .. Paula, @reneeg .. Renee, @philomena .. Rosie MN, @rosemarya .. Rosemary, @shirleymac .. Shirley, @sophie1019 .. Sophie, @suzieapples, @tdrell .. terri, @tutti .. Lisa, @windwalker .. Terri, @boomerexpert, anyone else I forgot to make note of!

Once again in our supportive community .. one of our members has stepped up to the plate and volunteered to Mentor an Advocacy Forum to FIGHT for getting trials for NEW antibiotics for our MAC disease! That member is @boomerexpert! Please thank her! The new Forum can be reached at:
https://connect.mayoclinic.org/discussion/we-must-advocate-for-ourselves/?pg=3

I feel confident that ALL of you will support her in this effort as you have supported each other on our shared journey! She will make it easy for you by sharing lab name/addresses/person to address it to .. an outline letter that you can send to the research labs .. BUT you MUST personalize your letter by talking about your OWN personal struggles .. your hardships. Make them see YOU as a human being .. NOT as a statistic or a number!

Again, I want to thank Heather, @heathert , for getting this ball rolling .. for doing so much research! We have some awesome members in our community .. hats off to each and every one of you!

I am grateful to be a part of this community! Hugs to all! Katherine

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