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I find all of this interesting on the Mayo Clinic website. I just got off the phone with them and I’m desperate for someone to give me an actual diagnosis even though after getting my urine analysis back and doing the VCS vision test, reading up on mold toxicity I KNOW this is what has caused my chronic pain.
My husband wants validation and a real doctor to give me a diagnosis and plan and I just want to make myself and my mom healthy. She has been diagnosed with early onset dementia and she is 64. Ive never been more certain in my life that this is my issue after living in chronic pain DAILY 24/7 since 2013, my head feels like it is going to explode, I can’t think anymore, I’m short of breath, I have GI issues that are intolerable and down right desperate to be a human again before I feel neurological damage is done for good. I was praying my call with the Mayo Clinic today was going to be it. It’s not.
Any help, I’d take it. What blood test to ask my doctors for, etc. they all look at me like I’m crazy.
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I am in the same boat as far as finding a clinic that administers tests for mold and mycotoxins. I have been researching for quite sometime now and as far as tests u can ask for there is an ELISA test that is a urine test and a mass spectometry test. There are a few more ive heard about but also in doing these tests, if u have been living with a mold problem for a long period of time, the mold can get into parts of your body and set up camp to where depending on your current health your body might have troubles detoxing from it and therefore not showing up in some of these tests. If thats the case, the doctors webinars ive watched all say they prescribe glutathione a few days in advance of taking these tests which force these toxins out in order to get a good idea of what your body is holding onto. There are also several blood tests that doctors can administer and they would serve as markers of a mold presence. doctor paulvin has a mold blog called mold 101 mold toxicity that goes in detail on different tests this site will give you a better insight on testing and also if u go on utube and watch any of Dr. Jill Carnahan's webnars on mold and mycotoxins, she gives great information! Hope that helps a little
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Hello @chronicpaingirl15, Welcome to Mayo Clinic Connect. From what I've read, testing for mycotoxins in humans is a simple and usually noninvasive procedure. In most cases, only a urine sample is required. I'm wondering if this is the test you were given at Mayo Clinic. I'm not familiar with Mycotoxin testing but there is some information on the Mycotoxin tests National Institutes of Health website here:
Mycotoxin Detection in Human Samples from Patients Exposed to Environmental Molds
— https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2680627/
Mayo Clinic also has some information on mold allergy diagnosis and treatment that may be helpful
— https://www.mayoclinic.org/diseases-conditions/mold-allergy/diagnosis-treatment/drc-20351525
Also found some information from the on urine testing validity that may provide some information for you.
Notes from the Field: Use of Unvalidated Urine Mycotoxin Tests for the Clinical Diagnosis of Illness — United States, 2014 — https://www.cdc.gov/mmwr/preview/mmwrhtml/mm6406a7.htm
Have you discussed if the doctor has any recommendations to help with your symptoms?