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Replies to "@ahtaylor I so appreciate your update. I feel with you both in the relief of "no..."
Neuroendocrine Tumors (NETs) | Last Active: Nov 11, 2023 | Replies (210)
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@ahtaylor
I so appreciate your update. I feel with you both in the relief of "no metastasis" but I also share with you in your disappointment that there is currently "no fix" for your problem. I applaud your determination as you journey towards a cure and/or treatment.
If you are comfortable sharing more, could I ask what new med you are trying? Is the med being used to alleviate the symptoms of the blood sugar problem?
Replies to "@ahtaylor I so appreciate your update. I feel with you both in the relief of "no..."
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Sorry for they delay in response. Getting back and catching up. We are going to try Victoza which is technically a diabetic drug and appears a little counterintuitive but does help with insulin and glucagon control. There will be close monitoring/communication re: effectiveness once I start the medication. The other alternative was diazoxide which has significant side effects. Thanks for the questions.