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@canpr

The doc who diagnosed me spent most of 2020 trying to find a reduction schedule that worked for me. After several flare-ups followed by increased Prednisone, we found that reducing 1 mg every six weeks worked for my body. I was never referred to a rheumatologist. I have moved, and will see my new doc in May. I will insist on keeping this reduction schedule but will ask for a referral.

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Replies to "The doc who diagnosed me spent most of 2020 trying to find a reduction schedule that..."

Did the doctor who diagnosed you ever mention or ask if you have any pain in your temples or tenderness in your scalp? Just mentioning that because it was one of the questions my rheumatologist asked me along with my primary care doctor when I was discussing my pain symptoms from PMR. Pain in the temple area, jaw pain and scalp tenderness are symptoms of another condition that is seen with PMR called giant cell arteritis (GCA). When you meet your new doc in May you might want to make a list of any questions you may have and take the list with you to the appointment. I always have to write stuff down to make sure I don't forget to ask at my appointments 🙂